On Tuesday I met with the PS and his nurse. Although my appointment was for 8:45 we didn't leave his office until 11:45. The first hour was just waiting with my 'gown' on....waiting so long that I took a little nap on the table. I practiced laying down with my arms out straight to test my frozen shoulder. It appears that it shouldn't be a problem - even if it is in this position for 12+ hours.
For quite some time his nurse answered all my questions. I must say that my PS's nurse is the best I have ever seen. She was able to put my mind at ease, made it seem doable....she may have noticed from my questions that I am afraid of PAIN. I asked so many questions related to it, that it became quite funny. At some point I will include a FAQ section on my blog to serve as a reminder for me, but also as a helpful tool for others moving down this road.
When I asked how I would feel immediately after waking up in recovery. The response, "like you got hit by a car." or was it train? That freaked me out about as much as the possibility of losing a tooth when my ET tube comes out. In the end, she and the PS were very supportive, but also very clear as to what to expect. I was hoping to be the same size, but that won't happen unless I have more 'flap' to offer. Sooooo, I am working on 'feeding the flap' from now until March 28th.
Oh, Boston is such a lovely city this time of year. The buds were coming out. The sun was shining. We walked and walked and walked. Very nice. We also did a trial run for DH, who will be staying across town all week if he doesn't like sleeping on a cot in my room. He's afraid he might need back surgery if he sleeps too many nights on the cot. I was so surprised and happy that that was even an option. They prefer that their DIEP patients get a single room, so that's how it is possible to have DH in there with me.
At this point I am still pretty scared, mostly about the pain and a little bit about appearance. But tonight I will speak with a woman who had this surgery done last year who understands LCIS and the nature of 'elective' surgery.
2 comments:
I am sure you are scared. When do you actually have the surgery?
Stay strong. You are a wonderful role model for your girls!
Your post made me think of this coffee cup I found:
http://www.facebook.com/photo.php?pid=563105&id=1667786418&op=4&view=global&subj=222632592032&oid=222632592032
I can't lie - it does feel a lot like being hit by a truck - but the good thing about pain - it fades - ya know - it fades - and you can say goodbye to that HUGE cancer risk - which you know hurts a lot worse than this. You are stronger than you think you are, you CAN do this. I'm doing it. If I can do it, anyone can do it - because I have no pain threshold at all anymore, and I'm doing it. Maybe not always gracefully, but that's okay, right? You can do it too, you really can..
Teri
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